Monday, March 18, 2013

Response To Recent Comments

I am always appreciative of any comments, but when people take time to comment like Anonymous did on the last post about Michael, I really, really appreciate it.  I will try to answer some of the questions posed in the comments.

First, Michael has been on an IEP since he was 3 for his significant speech delay.  He was only in EI for 6 month because we had hoped that he was just a little slow in talking, like my husband was.  He started in an integrated classroom, but after a couple of months, it was felt like he needed more support. We got together and revamped his IEP to include an extended year program as well as a much higher teacher to student ratio.  I believe that this has been a great help.

We finally decided to have him evaluated for Autism and ultimately, he was diagnosed May of 2012.  We had another IEP meeting and asked that he be evaluated for OT since he was also given a sensory integration diagnosis along with his PDD NOS.  OT felt that he did not have any OT needs that impacted his school day.  Speech on the other hand continues to be involved.  He is being seen for speech, both individually and in a small group setting, as well as in the integrated classroom.

I love the idea of seeing him in the classroom, but I think I may be more of a distraction.  I have been in to see him, but very informally.  He tends to stay with me and not do classroom things.  He also doesn't transition well after I leave (though it is only for a short time).

I think he is probably doing better than I am thinking, but I am still a little apprehensive.  He isn't fully potty trained and still wears pull ups at school.

We have a transition meeting set up for April 2nd.  His current teacher, his speech teacher, the integrated kindergarten teacher (who has observed him in both his classroom and the integrated classroom), and my husband and myself will be there.  I think that this meeting will help.  I think having the kindergarten teacher there will help.  I guess I don't do well with transitions like Michael.

I need to look at the kindergarten standards.  I think that he is doing well, but is probably a little behind.

As for sleep, I think this is where his sensory stuff really comes into play.  He just can't seem to settle on his own.  With out Melatonin, he will stay awake and have a ton of energy, just like the energizer bunny!

I am also noticing that he is getting more fearful of sounds than he used to be.  He was literally in tears when the fire alarm went off at the mall.  That meant I was literally in tears too.  He is starting to comment about the dryers in the bathroom making sure that I am not going to put them on when we go in.  He is also fearful of those squishy balls with hair, almost koosh like, but different.  He's not a fan of Koosh balls either.

As for music, it was where he shined with his verbal skills.  Even when he couldn't talk, he would attempt to sing and dance just like in music videos.  He loves acting out his TV shows now, sometimes in a repetitive way and sometimes in a way that just amazes me how much he remembers of the shows that he loves.  Sometimes, it's things like this that make me think he should be in music/theater groups instead of soccer.  If he were to go into a sport, I think swimming would be where he would shine.  Again, probably his sensory issues and inability to slow down are more relaxed in the water.  

As I look this over, I think it make be a little disjointed, like most of my writing.  I am not a writer and I am not great at grammar, but writing my blogs are something I love to do.  Please, if anyone has thoughts on Autism, feel free to share.  I will start sharing some things from my other 2 kids days too.  This blog is supposed to be about my crazy but amazing life as a married mom of 3 trying to work and enjoy life and all it's craziness!


1 comment:

  1. It's me again! Reading your explanation reminded me of when my son was in pre-school (I had forgtten) that his teacher would hide/ shield me from being seen for the same reasons you describe below! I can laugh about it now (b/c she went to some great lengths to allow me to observe without disrupting too much)! I remember standing behind a movable chalkboard, an easel, and some fabric on various occasions! I continue to go into his classroom at least once a month; no longer having to be covert once he entered Kindergarten.

    The standards will give you an idea of goals they should implement next year perhaps mofiied for Michael. I would suggest that you request a copy of the draft/proposed IEP now ( and request that they provide it to you at least 5 days before your meeting)! That gives you time to adequately prepare for his meeting! Instead of seeing it at the meeting or 1 or 2 days in advance! This is a fairly common request! Good Luck!